Take a step back. There are times when that's the first move you
need to make when trying to determine how your parent is doing.
Look at the situation the way a concerned but objective outsider
would.
"Mom used to be so active . . . ."
"Dad's just rattling around that big, old house . . . ."
"My parents are eating less than what I feed my preschooler . . .
."
What do you need to be looking for when you're trying to determine
how your parent is doing? How your parent is really
doing?
The bottom line is this: Is your parent safe in his or her present
situation and able to do the things he or she wants to do, and
if not, what steps need to be taken to make that happen?
"To do the things he or she wants to do" brings up the issue of
quality of life. You need to remember it's your parent— not you,
not your siblings, not your parent's siblings, not a concerned
neighbor—who determines what that life will be.
Wait a minute here! If Dad refuses to go to the senior center
anymore and prefers to stay home and watch "The Young and the
Restless," "All My Children" and "General Hospital" every day,
don't you need to step in—for his own good—and . . . .
Maybe. Maybe not. That's what assessing is all about. It's looking
carefully at each piece of the jigsaw puzzle to get the complete
picture, and not simply focusing on one or two pieces. The
complete picture needs to include information from basic areas:
physical, mental, emotional or social, and spiritual.
What can make the task even more difficult is trying to look at
each area objectively. It can be hard to put aside emotions, and
there's always the temptation to gloss over some area or need
because the truth can hurt so much. ("Well, yes, Mom doesn't
seem to hear everything that's said but . . . .")
And you need to base your assessment on what you see your parent
doing or not doing now. ("I know Dad's always been able to . . .
.")
Also, you can't dismiss an apparent problem with a handy excuse.
("If he weren't tired today, I'm sure he could . . . .")
It's best to begin any assessment with reviewing some good, basic
information on the aging process to get an idea of what's
normal. For example:
--Dad says he seems to be forgetting things lately. Should I worry?
--Mom says her feet have gone numb. Is that typical?
--Dad has trouble reading the newspaper. He's just sure the print
has gotten smaller. What's that mean?
--Mom used to get up at the crack of dawn. Now she's sleeping in
till 8:00 or so. Is that bad?
Your parent's doctor is a good resource for getting that type of
basic information. So is the Area Agency on Aging. It can be
contacted through Senior Information and Assistance.
If your parent has been diagnosed with a particular illness or
disease and you want information of a more specific nature,
visit the web site for the national association that focuses on
it. Often there's also a toll-free number. Or call information
(1-800-555-1212) and ask for any listing under that particular
topic. For example, "Parkinson's Disease" or "stroke."
Once you have a basic idea of the aging process and any diagnosed
conditions you can better look at the major areas of assessment.
Physical
Your parent needs to see a doctor for a complete physical
examination, and you both need to listen to what the physician
recommends.
You need a good—meaning clear—diagnosis. Hearing "It might be this
or it might be that or it might be something else" isn't going
to help. You may not get an exact answer the first time. Keep
asking, report any changes in symptoms and be persistent. You
also need to ask about the prognosis. The diagnosis is the
identification of the disease from tests and symptoms. The
prognosis is a forecast of what's going to happen because of
that particular problem. For example, how long will this symptom
last? Will other complications and problems follow? How soon?
Will there be a rapid deterioration in health or a gradual one?
And so on.
Your parent's hearing and vision also need to be tested.
And take a look at your parent's daily routine. How is Mom
sleeping? Has she lost weight recently? Is she smoking? Has she
been drinking more? Should she be drinking at all with the
current medication she's taking?
What medications is Dad on now? If he has more than one doctor
prescribing more than one medication, does each doctor know what
the other has given him?
What about mobility? Can Mom get up from a chair and walk around?
Does she need some adaptive equipment, such as a walker or cane?
Is there a problem with incontinence, the loss of bowel, or more
commonly, bladder control? This is difficult to talk about.
Although there are many television ads praising the benefits of
adult protective wear, the subject is still taboo in many
households. Yes, it can be extremely embarrassing to have to ask
or answer questions about incontinence but it needs to be done.
And done respectfully.
And finally, listen when your parent tells you his or her symptoms.
It may be that day after day, week after week, it seems to be
the same litany of minor aches and pains or of problems already
being addressed, but there could be something new in there.
Something that needs immediate attention.
Mental
How is your parent's memory, both long- and short-term? Does Dad
seem confused? Can he remember Christmas 1955 but forget to eat?
Can he still handle his own finances? Can he make and stick to a
decision or does he seem able to say yes and no in the same
sentence and mean both?
Is Mom showing poor judgment? Did she leave the front door wide
open all night—in a very unsafe neighborhood—because it was hot
out?
Does she know what day it is? What time of day?
Can she follow a conversation? Does she seem to have trouble with
her receptive language ability? (Her ability to understand the
words you use and follow the general train of thought in
everyday conversations.) Is there a problem with her expressive
language? (Does she use the wrong word or seem unable to come up
with a word for which she's searching?)
Is she using "suicidal phrases"? Does she say things like "Life's
not worth living anymore." "I don't want to be here." "What's
the point?" "I hope it's over soon." "It would be better if I
just died."
Is she aware of her mistakes, and does that make her feel
frightened and angry or is she oblivious to them?
Is there evidence of dementia—cognitive loss—a deterioration in
mental ability? Do you need to arrange for a professional
assessment?
Emotional and Social
Again, what do you see? Is Mom depressed quite a bit of the time?
Does she not want to get up in the morning? Does she complain of
having no energy? Does she burst into tears?
Is she grieving? Has she recently suffered a major loss? (The death
of a spouse, failing health, an amputation and so on.) Does she
seem angry all the time? Frustrated? Resistant to any help?
Is she frightened most of the time? Is she generally anxious or
agitated? Is she afraid to stay alone at night or does she panic
when you say you have to leave?
Has her mood been taking wide swings, from extremely angry to
completely passive?
What about socially?
Does it seem that Dad is becoming more and more isolated from the
rest of the world? Does he get out and see other people as much
as he wants to? Have telephone calls and letter-writing replaced
visits, and is he content with that?
How does he spend his leisure time? Does he just sit in front of
the television during most of the day? Does he have any hobbies?
Does he have a pet?
Is he just not interested in anything anymore or has he adjusted
his interests to match his abilities? (For example, he used to
love gardening and now he reads gardening magazines and watches
gardening shows on TV.)
Does Dad know what he needs and if so, can he get it for himself?
If he wants to go some place, can he figure out how to get
there—by walking or driving, by taking a bus or taxi, or by
arranging to have someone drive him? Is he still involved at his
parish? If he can't make it to Mass, can he arrange for someone
from his parish to stop by the house? Does he stay for "donuts
and coffee" and visit with fellow parishioners.
Spiritual
How about Mom's spiritual life? Does she practice her Faith the
same as in the past or has it faded away?
Does she continue to attend Sunday Mass? Has she faithfully
attended daily Mass, but now can't or doesn't want to?
Does Dad have access to the Sacraments? If he can't go to Mass,
does he have a Eucharistic minister come each week?
Is his parish community involved in his life? Is he on the list of
the sick in the parish for the "Prayers of the Faithful" at
Sunday Mass? Does he still attend his monthly Knights of
Columbus meetings?
Has he talked to a priest lately? Would he like to arrange an
appointment for your parish priest to stop by for a visit?
Does he have a Bible near-by for reading? Would he like other
spiritual reading? Lives of the Saints? Daily devotional?
Do you and your parent pray together? Would he like to? Would he
like to say the Rosary?
Does he seem at peace with this time in his life or is he
frightened, bitter, angry and confused? Does he ever express a
desire to improve the spiritual part of his life?
From an evaluator's view
There may be a
major concern in one of the areas that obviously needs to be
addressed first. It could be that nothing stands out, but there
are a lot of little problems which, added together, may mean a
parent needs some kind of help from you.
To evaluate a
senior's living situation considers the individual's "activities
of daily living." Without help, can she: eat, walk, use the
toilet, take a bath, and get dressed?
We also need to
look at "instrumental activities of daily living." Can he:
handle the finances, go shopping, drive the car or take the bus,
do the housework and laundry, prepare meals and take the right
medication, at the right time, and in the right amount
Once needs are
determined—and sometimes it's best to do this with that outside,
more objective help—then you can investigate how those needs can
begin to be met by family, friends, neighbors, people from the
parish and professionals.
But keep in
mind that those needs may fluctuate. Mom may have to have
someone in to help with the cooking and cleaning for a while
after her surgery but later she can resume those duties. Dad
might have had no trouble writing the bills six months ago, but
recently there have been a lot of extra charges for late
payments.
Assessing a
parent's need isn't a one-time task. It's a job that needs to be
repeated periodically to make sure you're seeing all the little
pieces in order to get a clear view of the big picture: your
parent's health, safety and quality of life.