The sights, the sounds, the smells . . . a hospital seems
like a different world to most of us who aren't in the medical
field. It's a foreign place where we don't know the language,
the rules, the customs. So when your loved one must enter one,
often it's not just a time of worry and fear, but also a time of
confusion, both for your care-receiver and for you.
These are some suggestions for making the experience easier:
--Be sure that all paperwork regarding legal, financial, and
end-of-life wishes is completed, signed, and filed with your
loved one's records.
--Keep in mind that you're entitled to ask questions. If your
loved one has OK'd it with his or her doctor, it's perfectly all
right for you to call your care-receiver's physician, identify
yourself, and find out what's happening now and what's being
planned. In most cases, a physician will be very willing to
discuss your loved one's condition with you. Of course, this is
only with your care-receiver's permission.
--If your care-receiver is being seen by more than one
doctor, you may need to plan a phone consultation with any
specialists who are also treating him or her.
--Once your care-receiver has been admitted to the hospital,
introduce yourself to the staff on the floor where he or she has
been assigned. (This can be done over the phone if you don't
live near him or her.) Find out what the typical daily schedule
is on that floor so you'll know the best times to call or visit.
--Ask when your care-receiver's doctor makes rounds. Usually
this is done early in the morning and again in the evening.
These are the best times to see the doctor and ask questions.
The doctor may have a great deal of important information to
share, so much that a patient of any age can feel overwhelmed.
It helps to have two people hearing that information and asking
questions.
--If you or your loved one thinks of questions when the
doctor is not around, jot them down so you'll remember to ask.
And jot down the doctor's answers, too. Sometimes it may seem as
if there are so many health-care professionals seeing your
care-receiver that it's hard to remember who's who and who said
what. Make a note of those things as well.
--Ask about social services at the hospital and if a visiting
chaplain or extraordinary minister of the Eucharistic is
available. Find out if the hospital has a chapel and visit it
often. You'll find support there and the comfort you need.
--Make use of the discharge planner. Often this person is
contacted through the social services department. He or she is
usually a medical social worker or a care manager who
coordinates the discharge of patients. The discharge planner
looks at what is happening now -- based on information from
doctors, nurses, occupational and physical therapists, and
others -- and what will happen when your loved one goes back
home or on to a nursing home or assisted-living facility.
The discharge planner is the one who lines up visiting nurses
and therapists and has referral information about non-medical
assistance, such as housekeeping. Patients are discharged sooner
now than they were in the past and may need special instructions
for continuing care at home. The discharge planner can arrange
for the physical or occupational therapist to teach you about
the devices your loved one may need. Watch for subtle, and not
so subtle, pressure for you to accept more responsibility than
you are able to handle.
He or she can also line up equipment for home use, perhaps
through Medicare. Don't be shy about asking for items for your
loved one; red tape and regulations can make it much more
difficult and expensive to obtain that same equipment after he
or she is back home.
--Meet with the discharge planner early, before you receive
word that your loved one is going to be discharged. Often a
patient is given less than 24 hours' notice of a discharge, and
while it's going to be great to have your care-receiver back
home again so soon, this may not be enough time to get
everything set up so that the homecoming is a safe and
successful one.