It's not unusual for a family caregiver to discover that an
unexpected problem is all the number of possible solutions.
After looking carefully at your care-receiver's needs and the
various ways to meet those needs, it may become clear there is
no single right choice. There may be many choices, each with
merit.
So which is best for him or her? How can you be sure you and
your loved one are making the right decision?
The following are basic principles used when assisting someone
who needs care. It can help a family to consider each when
trying to reach a decision.
--You're dealing with a whole person, not simply one or two
particular problems. It doesn't mean your loved one is doing
well just because he or she has a safe place to live and is
eating all right.
For example, what about her health in general? Is she getting
the proper care?
What about the need to get out and socialize? Does he have the
opportunity to be a part of the community?
What about her spiritual needs? Can she get to Mass? Does she
still feel as if she's part of the parish?
--A care-receiver maintains the right to be treated with dignity
and respect. A solution should not humiliate or embarrass your
loved one. His or her privacy should continue to be respected.
--Each care-receiver is an individual. Avoid any "cookie-cutter"
approaches. Just because one particular choice worked best for
your neighbor's family doesn't automatically mean the same will
be best for yours. Just because one solution was the best fit
five years ago doesn't automatically make it right today.
It's so easy for a family to fall into the trap of thinking,
"This is how we did it with Grandma, so this must be how we need
to do it with Mom." Yes, it may be the best way but then
again, it may not.
To use another comparison, the best-fitting solutions, like the
best-fitting suits, are tailor-made, not bought off the rack or
hand-me-downs.
--It's important your loved one is involved in the decision
making and that means keeping him or her in the loop when
information is being gathered. He or she should participate in
the entire process.
It also means there are no secrets. (For example, it is not
uncommon for a family to want to hide or disguise the cost of a
particular service (home care, for example) because "Dad won't
like it.") Invariably, keeping secrets, withholding information,
or telling little white lies backfires.
--Closely related to that participation, is self-determination.
This means that, even if you strongly disagree with your
loved one, she maintains the right to make her own decisions.
There are exceptions when intervention is necessary, such as
significant dementia or attempted suicide, but remember the
exceptions are rare, not the norm. Just because you don't like
your loved one's choice doesn't mean he or she no longer has the
right to make that choice.
Perhaps no solution will perfectly match all the principles, but often the best choice for your loved one -- for your parent, spouse, child, other family members or friend -- is the one that comes closest.