Human beings weren't
created to work nonstop seven days a week, fifty-two weeks a
year. To be responsible for someone else twenty-four hours a
day. Our bodies and our minds simply can't maintain that
grueling schedule. But in many ways, that's exactly what many
primary caregivers try to do. And it's not good for them or for
the people in their care.
"Respite care" is a
term that's becoming more common. It means a break for someone
who is taking care of an ill person, a rest for the person
primarily responsible for the well-being of another. In some
instances, it's a mother taking care of her child who is
severely disabled; in others, it's an adult child and a sick
parent. In still others, it's one aging parent taking care of
his or her ill spouse.
No matter what the
particular circumstances may be, the basic truth is the same: A
primary caregiver needs to take breaks or soon will burn out,
soon will be unable to take care of anyone, including himself or
herself.
These are some points
to consider:
--Caregiving is a
complicated experience. It's physically and emotionally
draining. There's a tremendous sense of responsibility coupled
with strong feelings of guilt: I'm not doing enough. I'm not
doing this well. Sometimes I don't want to do this and I wish
someone else would.
Without a break,
without some type of respite care, anger may surface, and with
it an increased risk of physical and verbal abuse which should
not be tolerated. If abuse is happening already, it's a clear
indication respite care is not only needed, but is overdue.
--Respite care does
not mean a week off every six months or a free weekend every few
months (although those types of breaks are also very helpful and
But often that's more
easily said than done. It can be hard for you, a primary
caregiver, to allow someone else to do your job, even for a
short while. Then, too, others--including family members--may
not understand why you need to get away. And the person in your
care may not understand either. He or she may add to your guilt
by apologizing for being such a "burden."
--Don't be surprised
if you do feel guilty when you're taking a break. If you blame
yourself because you need to get away for a time. If you feel
bad because in some ways you might not want to go back.
You need to remember
respite care will help you be a better caregiver. Taking that
short step back from the immediate situation will help you see
it better. It will give you a moment to catch your breath.
--Remember, too, that
the break is for you. Don't fill the time running errands for
the person in your care, going grocery shopping, getting the car
fixed, and so on. Do something for you.
Have lunch with a
friend. Check out a support group for others facing the same
situation you are. Go bowling. Play a round of golf. See a
movie. Visit the library. Sit in a coffee shop and read the
newspaper. Do what you used to like to do but no longer have the
time for.
--To find someone to
help you with respite care, check with the local Catholic social
service agency. Ask at the parish. Call or go online to contact
your local "Senior Information and Assistance"
--And keep in mind
that there may be state money available to cover the cost of
respite care even for people who are not considered low-income.
One final point.
Perhaps you are not a primary caregiver but your spouse or
sibling is. Remember, it can be very difficult for people in
that position to say "I need some time off." They may be waiting
for a push from you to begin to take those vital breaks. Be
gentle, be loving, be firm, as you help them see what a
difference respite care can make.